Development of a Patient-Reported Outcome Measure for Geriatric Care: The Older Persons and Informal Caregivers Survey Short Form

TitleDevelopment of a Patient-Reported Outcome Measure for Geriatric Care: The Older Persons and Informal Caregivers Survey Short Form
Publication TypeJournal Article
Year of Publication2018
AuthorsSantoso A.MM, Lutomski J.E, Hofman C.S, Metzelthin S.F, Blom J.W, van der Wees P.J, Rikkert M.GMOlde, Melis R.JF
JournalValue Health
Volume21
Issue10
Pagination1198-1204
Date PublishedOct
ISBN Number1098-3015
Accession Number30314621
Keywords*Geriatrics, *Patient Reported Outcome Measures, *patient-reported outcomes, *short form, *Validation, Aged, Aged, 80 and over, Caregivers/*standards/trends, Female, Health Services for the Aged/*standards/trends, Humans, Linear Models, Male, Netherlands/epidemiology, Surveys and Questionnaires/*standards
Abstract

BACKGROUND: The Older Persons and Informal Caregivers Minimum Data Set (TOPICS-MDS) is a standardized data set that was developed to evaluate the quality of multidimensional geriatric care. There is an inherent need to reduce the number of TOPICS-MDS survey items to core outcomes to allow it to be more easily applied as a patient-reported outcome measure in clinical settings. OBJECTIVES: To create a TOPICS-short form (TOPICS-SF) and examine its validity. METHODS: Data in the TOPICS-MDS from persons aged 65 years and older in the Netherlands were used for the following analyses. Multiple linear regression analyses were performed to select the items and to derive domain weights of TOPICS-SF. A priori hypotheses were made on the basis of psychometric properties of the full-length TOPICS-MDS preference-weighted score (TOPICS-CEP). The validity of TOPICS-SF was evaluated by 1) examining the meta-correlation of the TOPICS-SF score with TOPICS-CEP and two quality-of-life measures, that is, the Cantril Ladder score and the EuroQol five-dimensional questionnaire utility index, and 2) performing mixed multiple regression of TOPICS-SF scores across key sociodemographic characteristics. RESULTS: TOPICS-SF scores were strongly correlated with the TOPICS-CEP (r = 0.96) and had stronger correlation with the EuroQol five-dimensional questionnaire utility index compared with the Cantril Ladder (r = 0.61 and 0.38, respectively). TOPICS-SF scores were higher among older persons who were married, living independently, and having higher levels of education. CONCLUSIONS: We have developed the 22-item TOPICS-SF and demonstrated its validity, supporting its use as a patient-reported outcome measure in geriatric care.

URLhttps://linkinghub.elsevier.com/retrieve/pii/S1098301518302523
DOI10.1016/j.jval.2018.02.011
Short TitleValue in health : the journal of the International Society for Pharmacoeconomics and Outcomes ResearchValue in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research
Alternate JournalValue in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research