Use of the interRAI PEDS HC in children receiving home care in Ontario, Canada

TitleUse of the interRAI PEDS HC in children receiving home care in Ontario, Canada
Publication TypeJournal Article
Year of Publication2022
AuthorsThorburn-Winsor E, Doherty M, Jones A, Vadeboncoeur C
JournalBMC Health Services Research
Date PublishedAug 18
ISBN Number1472-6963
Accession Number35982429
Keywords*Home Care Services, Child, Children with medical complexity, Female, Humans, InterRAI, Male, Ontario/epidemiology, palliative care, Pediatric home care, Peds-hc, Pilot Projects, Prevalence, Standardised assessment

BACKGROUND: There is no standard assessment tool for pediatric home care recipients in Canada, limiting the availability of comparable, population-based data. The objective of this study was to describe pediatric home care recipients who were part of a pilot implementation of the interRAI Pediatric Home Care Assessment Form (PEDS-HC) among medically complex children referred to home care agencies in three regions in Ontario, Canada. METHODS: All 14 agencies providing home care to children in Ontario were invited to participate in the pilot project, and 9 participated in an education session. Three of these agencies used the PEDS-HC during the pilot implementation between February 2018 and March 2020. We used de-identified data to describe the demographics, home care needs, and diagnoses of pediatric home care recipients. RESULTS: The sample of 474 assessments was predominantly male (60.34%), with an average age at assessment of 12.36 years (SD 4.56). Most (78.48%) reported English as their primary language. Most children assessed had between two and eight medical diagnoses. Diagnoses reported varied: gastrointestinal, musculoskeletal, respiratory and neurological conditions were most common. The prevalence of urinary incontinence (40.1%) and bowel incontinence (70.9%) were high. Over 60% of children were rarely or only sometimes understood. A majority of children had adequate hearing (83.5%) and vision (68.6%). Extensive services were being provided in 10% of children assessed. Most children received care both at school and at home (70.89%), with 20.89% receiving home care only. CONCLUSIONS: The PEDS-HC provides a detailed, standardised descriptive profile of medically complex children receiving home care. Expanding use of PEDS-HC would promote consistency in care planning and delivery on the patient level, enable cross-jurisdictional comparisons, and inform utilization tracking and health care funding decisions on the organization and provincial levels. Copyright © 2022. The Author(s).

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The authors declare that they have no competing interests.




Short TitleBMC health services research