Widening the View: A Standardized Approach to Capturing Family Members’ Perspectives on Quality of Life in Long-term Care

TitleWidening the View: A Standardized Approach to Capturing Family Members’ Perspectives on Quality of Life in Long-term Care
Publication TypeThesis
Year of Publication2023
AuthorsNorman K
Academic DepartmentWaterloo's Insitutional Repository (UWSpace)
Abstract

Background and Rationale: Family members provide important functional and socio-emotional support to residents living in Long-Term Care (LTC). With high rates of cognitive impairment among residents, family member input is increasingly valued in new LTC standards provided by Health Standards Organization (HSO), given their unique perspectives, knowledge, and role in the resident’s circle of care. A standardized instrument to collect this input is lacking in the current literature. Methods: A scoping review was conducted to gather and evaluate the existing literature studying the instruments used to evaluate family perspectives on Quality of Life (QoL) in LTC. This and retrospective analyses of secondary data collected from 3 previous studies using the interRAI Family QoL LTCF instrument (FamQoL V1), informed the development of a new instrument, the interRAI Family QoL LTCF Version 2 (FamQoL V2).

Reseach Notes

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