Factors associated with informal caregiver's ability to continue care: a subgroup analysis

TitleFactors associated with informal caregiver's ability to continue care: a subgroup analysis
Publication TypeJournal Article
Year of Publication2022
AuthorsWang S., J. Mello DAlmeida, Declercq A.
JournalAge and Ageing
Volume51
Issue12
Keywords*caregiver burden, *caregiver support, *cognitive defect, *informal caregiver ability, *risk factor, ADL disability, Adult, Aged, algorithm, anger, Anxiety, article, care behavior, Caregiver, Cognition, communication disorder, coping behavior, counseling, cross-sectional study, daily life activity, depression, education, employment status, fall risk, family support, Female, Frail Elderly, health care cost, home care, home visit, Human, human experiment, Male, mild cognitive impairment, multivariate logistic regression analysis, pain, problem behavior, psychological counseling, psychotherapy, social participation, social status, social support, very elderly
Abstract

Background/objective: maintaining informal caregiver's ability to continue care can prevent early institutionalisation and decrease health care costs, contributing to sustainable health care. This study aims to identify factors associated with informal caregiver's ability to continue care across several degrees of cognitive decline and risk of burden. Method(s): this is a cross-sectional study that collected nationwide data on frail older people and their informal caregivers living in the community. Instruments used were InterRAI Home Care, Zarit Burden Interview and questionnaire for the informal caregiver. Multivariate logistic regression analyses and a stratification of the population were performed. Result(s): a total of 8,309 people had at least one primary caregiver, and a majority of them were able to continue care (68.2%). Cognitive impairment was a risk factor for being able to continue care, even the borderline (odds ratios (ORs): 0.72; 95% CI: 0.61-0.85) or mild condition (OR: 0.52; 95% CI: 0.43-0.61). Protective factors like social participation of older people, strong family support and availability of a secondary caregiver showed the highest association in subgroups with mild cognitive impairment (ORs: 2.20, 2.08, 1.64) and in subgroups at low risk of burden (ORs: 1.91, 2.77, 1.64). Conclusion(s): factors associated with informal caregiver's ability to continue care vary across several degrees of cognitive decline and risk of burden. Interventions related to family and social support resources are recommended, and informal caregivers at a lower level of risk may benefit most. Supportive counselling should be proactively provided to informal caregivers, considering the changes of associated factors with the ongoing caregiving situation.Copyright © 2022 Oxford University Press. All rights reserved.

DOI10.1093/ageing/afac275